About Katie

Katie Kramer (Jan 2013)

Katie Kramer (Jan 2013)

Our dear Katie Kramer peacefully passed away on July 13th, 2014 from metastatic breast cancer….
Read more about this sad news here

 

Feb 2013

Hi this is Katie and I have created this site with the intention to share thoughts and love with you all, in the time that I have left.  With the huge number of people in my life, it is getting harder for me to stay in touch, and keep you all updated.  I am hoping to be able to communicate with more of you through this website.

Given my difficult journey over the last few years and my need to spend time and energy coming to grips with my ever-changing situation, I have not reached out to all my friends and loved ones.  Some of you may be just finding out now about my current condition. I regret not being able to be in touch personally before this.  I find it difficult to tell the whole story to people, as it forces me to relive the experiences over and over again.  As the cancer is progressing, I want to spend my time living and talking about things that inspire me and make me laugh, reliving happy memories of what has been a blessed and privileged life. It is also important for me to express gratitude to those who have influenced my life, as well as finding a way to give back to others who may have experienced similar challenges.

Why I am telling this story

I am choosing to share this very personal experience in the hope that anyone who may be going through anything similar to this — will find comfort through hearing my story. In the last two years, just about everything I feared happened all at once. I was diagnosed with advanced stage breast cancer (which later became a terminal diagnosis), a contentious divorce (that was initiated by my husband), a custody dispute, an insurance company that rejected my claims for treatment, and the sudden passing of my father. And until I entered hospice, I did not feel I had support (for the myriad of issues) I was facing all at once. To be faced with this at 41 years old seemed insurmountable. There is a very big difference in handling a terminal diagnosis at the end of your life, as opposed to in the middle of it. It is my sincere hope that anyone going through similar circumstances will find light in the midst of the darkness.

My Journey

In 2011, at the age of 40, I was diagnosed and treated for what was thought to be Stage 3 breast cancer. The cancer was very aggressive. I experienced a series of treatments that included chemotherapy, a double mastectomy and radiation. The cancer was in my right breast and was estrogen, progesterone positive. My lymph nodes were also involved. It was decided I needed chemo first to shrink the lymph nodes (or to hopefully eliminate them prior to surgery).  They hoped this would decrease possible nerve damage that I could incur during the double mastectomy. I opted for the most aggressive treatment: six sessions every 3 weeks with dosages of Adriamycin, Cytoxan and Taxotere.

The medical team I managed to assemble in five days included a radiologist, a breast surgeon and a chemo therapist. Many of my friends and loved ones helped connect me to the right doctors and assisted me in making some of the scariest, life-altering decisions I had ever made. For that, I am very grateful.

While all this medical turmoil was taking place, several shocking developments happened around the same time. While I was undergoing chemotherapy my husband (unbeknownst to me), informed my family he was going to file for divorce.  A family friend interceded and convinced him to wait until the chemotherapy treatment was over before filing. He informed me of his intentions after my third chemo treatment. And then the other shoe dropped…

At the same time, the health care bills were coming back denied for reasons that the health insurance company did not have to disclose to me, but said my case was under investigation.  The Affordable Care Act, put in place months before I was diagnosed, saved my life.  Nevertheless, I still had to find an attorney willing to fight the insurance company to make sure that my treatment was covered. Mr. Jon Desenberg (a close family friend and retired attorney) helped me speak with two or three different attorneys who all said it was hopeless to take on an insurance company.  Thankfully, we found Wachler and Associates, who were willing to take my case, resolve this matter expediently and so that crisis was averted.

Even though my husband had stated that he had wanted to divorce me after chemo, the thought of simultaneously fighting with the insurance company, battling cancer, and going through a divorce seemed too much to undertake all at once.  However, all of that changed in July 2011, when a good friend encouraged me to check to see if my son’s passports were in the usual place, given the fact that my husband had already wire transferred the majority of our joint monies out of the country.  My friend was concerned that he was planning to take Nate and leave.  My husband, being a German citizen, meant Nate had dual citizenship. My worst fears were confirmed when I could not find either my husband’s or Nate’s passports.  It was at the urging of my brother (an attorney) that I file for divorce first in order to set injunctions in place that could prevent my husband from leaving the country with our son.  If they had left, I would have had no recourse. (Hague Convention)

Divorce proceedings began three months into my chemo regimen, and my husband was court ordered twice to pay me interim support, cover costs for Nate, and continue to keep me on his health insurance plan. The proceedings went into arbitration and none of the court orders were ever upheld.

I am still fighting to this day to maintain weekly contact with my son, while my husband continues to try and terminate my parental rights using my cancer diagnosis against me.

Later in Jan 2012, I discovered that my husband had been having an affair that I believe began prior to my diagnosis.  Without my knowledge, my husband began cohabiting with her sometime in the late fall of 2012, ignoring the Friend of the Courts recommendation to shield Nate from such situations.

With all these difficult things happening to me at once, intuitively, I began to ask some questions and do some research.  I discovered that 20% of married men leave their wives after they are diagnosed with cancer. (link)  I also learned breast cancer is one of the only diseases that does not have a law preventing the courts from discriminating against women just for having breast cancer (as it relates to losing custody).  Click here to view the most famous scenario regarding custody and breast cancer about a North Carolina mom who lost custody of her children due largely in part to her cancer diagnosis.  Thankfully this was overturned before she passed. (link)

I asked myself the same questions over and over. Why would my husband leave me at the time I needed him most? Could the court system potentially use my cancer against me as a reason for denying joint custody? Why wasn’t there a law protecting women with a cancer diagnosis from losing their children?  Why could I find no specific support group for younger women diagnosed with metastatic cancer and the myriad of problems that come with it?  Why was very little money for cancer research going to women with a stage 4 diagnosis? (link)  These are some of the questions I was asking but could find no answers.

In June 2012, I was devastated to learn that I had cancer in my hip bone.  While I was preparing to run a 5K that was to take place on my 42nd birthday to celebrate the health, remission, and renewed stamina I had felt …. I had been experiencing some pain in my hip and numbness in my right foot.  I assumed the pain was from running or neuropathy from chemo, but one day the pain was so severe I was unable to put weight on my leg.  Bone cancer was found to have progressed into my right hip.  The doctors compared my original CT scans from April 2011 which showed a small lesion in my iliac crest.  The new CT scan showed only a fragment of that area of bone was still existing, with multiple lesions in it. Additionally, the cancer had invaded the muscles surrounding that area.  In reality, I was already stage 4 before ever even beginning my treatment for breast cancer.  Thereafter, I had radiation treatment to zap that area of cancer and try to alleviate the pain, which was partially successful.

At this point, I was now classified as having Stage 4 Metastatic Breast Cancer, with very little hope of long term survival.  Further evaluation over the coming months revealed that chemotherapy could only prolong my life by a few months.  I also learned that my particular cancer was rare, and that it actually contained several types of cancer receptors requiring the use of multiple and simultaneous chemo treatments.  After getting several chemo treatments and experiencing severe pain as a side effect, I chose not to have further chemotherapy but instead to focus on the quality of the time I have left.

It has been an incredibly difficult emotional and physical roller coaster ride for me and all those around me.  After going through all the various treatments in 2011 and then having high hopes of being cancer free in early 2012, it was shocking and demoralizing for me to go running one day, thinking I was cancer free, and be told just a few days later that I now had metastatic breast cancer.

To further complicate my medical situation, my long and difficult divorce proceeding and custody dispute, which began in 2011, has turned into a protracted nightmare, creating untold suffering and is still not completely resolved.  I have often said my divorce has been more painful than my cancer.

Through this journey, I have found moments of peace and have tried to find deeper meaning in the midst what feels like chaos.  A favorite quote of mine that sums up the spiritual journey I have been on is noted at the header of the site:

“Acceptance of the unacceptable is the greatest source of grace in this world.”Eckhart Tolle

I am currently receiving home hospice care which has been incredibly helpful.  The weekly visits from the nurse assist with my pain management.  In addition to that I also receive weekly visits from the hospice social worker, who has been an amazing support to me, my family and friends.  I relish the regular visits with my son.  I am so grateful to my friends and the amazing support team we have created to ensure that his visits are full of teachable moments, fun and joy.  We are still creating special memories together and spending quality times that he will look back on fondly. Check out the galleries to see some of our fun activities and adventures.

For a lasting impact for others, I began in Nov 2012 creating artwork to give to family members. As my mobility was more limited, I began to search for ways that I could provide something to express my gratitude and love.  With the support of my father’s entrepreneurial drive, this small endeavor grew into a project to give back to cancer patients to provide something concrete to help them through radiation treatments. Please visit our Project Give-Back Details page to learn more.

Between the joyous visits with Nate, spending time with family and friends, creating new artwork and Project Give-Back, I have been a very busy girl.

I would love to hear from other cancer patients, or anyone whom has overcome challenges, big or small.  Please feel free to comment below, or anywhere on the site, and tell me a little about yourself.  I hope that sharing my story can help others out there, feeling like I felt at times, and that maybe some of the lessons I have learned can help others too, through this site and my regular postings.

Love, Katie

Feb 2013

——

Our dear Katie Kramer peacefully passed away on July 13th, 2014….  read more about this sad news here

  1. Cynthia geocaris March 2, 2013 at 5:28 pm

    Katie. I wish you the best and my prayers are with you. Steve and I remember all of those great times in college. Would love to hear from you if you can
    Cindy Geocaris

    Reply

  2. My brave, beloved cousin::

    You have been tested in a Biblical way and you have moved through the fire with increasing grace and beauty. I am awed and humbled by your strength in the face of relentless assaults, both inside your body and from without. You are setting a very high bar for your son,and he will need it, considering the unforgivable behavior of his father. But you will be his shining example of courage in the face of adversity, and the unconquerable power of love.

    I have always loved you but my admiration for you now exceeds all bounds. Thank you for sharing your story with me and Samantha, as well as your beautiful artwork, one example of which forms the background of this posting. I have tried to be of support to your mother, and I shall continue in whatever small way I can, but please make use of me in any way you need — it would be an act of generosity on your part to let me do something –anything– for you.

    You live in my heart now even more than in my head and I shall carry your glorious spirit with me —alive and luminous — for the rest of my life.

    love,
    Brandy

    Reply

    1. Brandy,

      You had such a big impact on me. Your brilliance and willingness to always listen to what I had to say meant a lot to me. I have many fond memories of our trips to see you and Sam. Love you!

      Katie

      Reply

  3. Katie. Thank you for sharing your story with the world! You are an inspiration! Love you!
    Tanya

    Reply

  4. Holly Shulman March 3, 2013 at 2:20 pm

    Katie,
    Of all your many gifts, your amazing verbal skills, both spoken and written, are truly an expression of your uniqueness, brilliance and power to connect. I have loved and admired this about you from day one. What a beautiful, honest, human and heartfelt articulation of your story. Your story is a complicated and difficult one to tell, yet you’ve done it with grace and clarity. You’ve allowed us in, to feel your sorrow and applaud your triumphs, to witness your miracles and celebrate your vision. Through this website we get to keep watching your story unfold. By connecting with you and your life today, we get to touch the wonder of a spiritual journey, a mother’s love, the birth of an artist and the foundations of a legacy. Well done Katie K. You know how much I love you.

    Reply

  5. Barbara Woolf March 3, 2013 at 8:01 pm

    Dear Katie,
    What courage and grace you show in being willing to tell your story so that others might be helped! You have had to deal with so many life-altering issues in such a short time, and I am in awe of how you have been able to sort through the tangle of difficulties and emotions and come to a place of making peace with your one and precious life. Your character shines through and your legacy of love is huge. You are in my heart, dear Katie.

    Reply

  6. Samantha Woolf March 4, 2013 at 1:00 am

    Katie,

    Having gone through a divorce myself, I can totally relate with your comments about how painful that process is. Your husnand’s behavior and character certainly doesn’t help to make that process easier. Having said that, thank you so much for sharing your story. I can’t begin to imagine what you must be going through. I’ve been praying to God for peace, strength, and courage for you during this difficult time. I hope the love and care you are receiving during this time is helping to carry you through. Sending you lots of love.

    Reply

  7. Katie,

    The strength and resilance you have showed over and over again have matched that of the biblical Job. You are my hero. Your son will always know that his mother has made an incredibly positive difference in the world, for so many people. Many families will be forever greatful for the help you provided them in times of crisis.

    You are not alone in what you have gone through. The great gift of this website is that it may provide the support and encouragement to other people going through very similiar circumstances who think they are all alone, just as you did. Your heart is worth a ton of gold and I have always admired your desire to want to make a positive difference in the lives of other people. As Shawn Rubin said, “You were the voice for the voiceless!” Never forget that.

    With Love,
    NW

    Reply

  8. Amy Satinsky Margulies March 11, 2013 at 11:11 am

    My forever smiling pledge daughter,
    Your smile, your strength, your creations, your love, will last forever and ever Katie.

    I am so sorry to learn all you have been going through, and continue to go through. You have brought so much joy, grace and beauty to your family, especially your son, and all you have crossed paths with in this world.

    Sending all my love, hugs and kisses your way,
    Amy Satinsky Margulies

    Reply

    1. Amy,

      How nice of you to reach out to me. Your kind words and the many memories we shared at U of W are not forgotten. I hope you are well and happy. Much love and sincere appreciation from your pledge daughter.
      Xo
      Katie

      Reply

  9. Thank you for taking the time to respond, Katie. Whatever little I’ve contributed to your life, you have given it back threefold. You are one of my shining stars.
    Don’t forget to ask for anything you need at any time. It would be a favor to me to be allowed to help you in any way.
    love,
    Brandy

    Reply

  10. My dear katie; Many years ago you and Steve et al birmingham temple went to Isreal. I always remember the closeness you all had. I still have the pictures of the “away from Rabbi Wine ” fun and think of you as that sweet, flirtatious, loving girl. You still are and I admire your sharing and courage. Anita Novak(steve’s Mom}

    Reply

  11. Dawn Ham-Kucharski November 15, 2013 at 8:50 pm

    Katie is and always shall be a class act. Alex Ham-Kucharski…now 15..now driving…fully mainstreamed thanks to you and is a typical snarky teen with an autism diagnosis people dont believe. Thanks to amazing Katie.

    Reply

Share your thoughts....

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.